Friday, December 1, 2000
Bone Scan and Body CT
After a day of rest to recover from the biopsy, they needed to do more testing even before the total results were back from pathology. The bone scan shows where cancer is in the body by tracing a radioactive substance that goes to fast growing cells in the body. This was the day that they told us that there was an additional tumor on top of one of Kelby's kidneys in her adrenal gland. This made it so much worse. Now we are dealing with a cancer that has already spread. The bone scan also found a hot spot on the top of her right femur and in one of her hips.
We have Group Health insurance, so at this point, they had their pediatric oncologist talk to us. We were going to have to change hospitals. This worried us at first because we truly loved the doctors and nurses at Childrens, but we were also tired of all the other people in our room. There were 4 beds in Kelby's room. Most of the time they were filled and sometimes with crying babies. Kelby didn't sleep to well there, not to mention the one person that got to stay with her. So, when they said we could have a private room at Group Health, we were ready. Dr. Louie is a very nice doctor. We like him a lot. He is gentle and doesn't talk above our heads. He might not be straight forward enough at times, but we just have to keep asking the tough questions. On that Friday they didn't have complete results, but he said that they thought it was probably a cancer called Neuroblastoma. They put Kelby at stage 4, which means she had the cancer and it had spread and there was some bone involvement. This is not a good diagnoses. They had us stay at Childrens over the weekend and planned to put in a IV catheter on Monday.
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