Sunday, June 3, 2001

Day Twenty-Three

Kelby is just getting better and better every day! She ate almost a whole fried egg for breakfast! I think that we'll be able to take her off this IV nutrition soon. Maybe we can step down to just IV fluids for a while to make sure she is hydrated. But, at least that way she can start eating like normal. We have an appointment to meet with the radiologists on Wednesday, June 6. They will also set her up for the radiation at that point. I guess that they have to calculate everything perfectly so they can set up their machines just so to do the radiation. They will be marking her with ink that won't wash off, so that each time we go in for the treatments, they will be able to set it up perfectly. The actual radiation treatments will be starting on June 11. We will have a couple weeks of going down every week day for treatment. My mom and GiGi Morrow are going to take turns at visiting to help me out during those weeks. (Very many thanks to you!) Side Note: I just wanted to explain to everyone why we got to come home instead of having to live in Seattle for 2 months. By being home, we are doing what is best for Kelby. She isn't in danger because we are home. The Seattle Cancer Care Allience was the entity that was going to make us stay down there. They do different types of stem cell tranfers, but make the rules the same for everyone. If Kelby had gotten stem cells from someone else, she would have been at much higher risk still. It may have made more sense to stay in Seattle if that were the case, but it isn't. Also, the Seattle Cancer Care Allience is a bigger organization than the Hem/Onc Unit at Group Health. They can't make exceptions for people because they deal with so many and don't know us as individuals like Kelby's Group Health doctors. That is why we were so excited to get transferred back to Group Health right after Kelby was healthy enough after her transplant. We can do our own home health care and the doctors know we can handle it. So, don't worry that we are putting Kelby in any kind of danger by bringing her home already. She is doing SOOOO well and we know that being home is really good for her. June 2001 - Week 2 >>

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