Day Eighteen

Kelby had a good night last night. Her nurse let her sleep more rather than disturbing her too much by checking things that we already know are in good shape. She slept a good solid night and woke up in the best mood we've seen her in in a while. Other than that there is not too much to report except that if you check her counts you'll see everything bounced quite well to give her the best numbers that she's had since before the trasplant. Oh yeah...we're also GOING HOME! Now we just have to keep her away from people for a while, but at least she'll get to be back in her own bed and hopefully take up some eating and drinking soon. For now we'll have a pump to give her TPN at home so she gets some nutrition. We'll also have to start looking ahead to getting the radiation therapy organized, followed by retinoic acid therapy. The radiation is fairly easy on her procedure wise, but the most concerning long-term wise because of it's damaging effects on bone growth. We will discuss all of that with a radiologist soon though. The life threatening parts of the treatment are pretty much out of the way (as long as we're careful for the next year or so), but Kelby is not out of the woods with this disease until a few years from now, so if and when you decide to quit following these updates (they WILL keep coming) please remember to keep her in your prayers. We hope you will continue to pray with us that Kelby ultimately defeats neuroblastoma, and that the harmful long term effects of the therapies she has gone through and will continue to go through are minimal. The statistics are on the disease's side, but God and you all are on her side so our team is stacked :) Whatever happens we know that Kelby is in good hands. Thank you all for your support over the last half a year to get us to this point. Hopefully we've peaked now, and can decend slowly back into a semi-normal lifestyle. BTW (by the way) - Don't go away because the updates will keep on coming! In the coming months you should be able to expect more pictures and video of the happier Kelby that we know since she'll be at home!