Sunday, May 27, 2001

Day Sixteen - Moving Day

We are all moved over to Group Health now. Kelby is doing good today. She has been sneezing, so we think she has a bit of a cold. They don't seem to be worried about that though. They just want to make sure that she doesn't get a fever and she still doesn't have one. Once we got over here we got to go for a walk around outside in the stroller. She didn't want to come in once she got a chance to go outside. She doesn't have to be hooked up to her IV until 5:00 because she is off all morphine and her IV nutrition is being cycled. She only gets the nutrition over 18 hours, so she gets to be off her IV pole for six hours a day. Soon we can go home. We have to get the IV nutrition (They call it TPN - Total Parenteral Nutrition) all figured out for home and get her to take some medications by mouth. She has to take one medicine for a year, one for six months, and one other for 30 days after the transplant. Yuck! Her white and red blood counts came down a little bit today. They say that is normal. They really expect it and say that it will come back up. Her platelets went up a little on their own though, so maybe she won't have to have any more transfusions. She is still a some what sleepy and cranky. She seems to be having temper tantrums now when she doesn't get her way. She is a little jealous of Tegan when I am holding her. I think she needs to get home where things can be more normal. She is used to having so much attention now. It has been a hard month. I hope things can get back to semi-normal soon. We are happy to be back with our familiar hospital and faces. We will miss Nurse Robin at Children's who was super and nice and understanding! Thanks for listening to us!

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