Back to Normal

Well, Kelby is about 100% today. She is so happy and ready to be out of here! They tried to taper her off the IV nutrition more slowly today, but her glucose level still crashed...not as bad as yesterday. So, the doctor said that we either had to stay here and go back to an 18 hour regimen over the weekend, put a feeding tube down her nose, or go home with out the artificial feeding. They told us yesterday that the "good old-fashioned" way of eating was really the best for her, so we decided we'll take her home today and get her back to eating her eggs, waffles, cheese, and milk. She has already started eating regular food again, so we know that she is back to feeling normal. Once we get home she'll be eating like a piggy again. She just had to get over those low blood counts and the getting sick. She has gained one and a third pounds in five days, so I think that means she is pretty good an caught up. If we have to come back in for another round of chemo, we'll just have them start the IV nutrition right then to be proactive about it. We have a meeting on Monday afternoon to go meet with the doctor that will be in charge of Kelby's stem cell transplant. We'll have to go over to Children's to meet with her(Dr. Julie Park). We are hoping to find out when they will do it and get more information about the actual process. Our doctors here at Eastside really think that she is ready to have the surgery and the transplant now. They think Dr. Park will want to do another round of chemotherapy first. So, we have to get this straightened out so we can figure out what to do. Before this last round of chemo, they did a very expensive test that found 2 in a million cancer cells in her bone marrow. Our doctors think that is very little, so she should be considered in full remission...and that was before this last round. But it all depends on what Dr. Park thinks. They want her to be in as much remission as possible before the stem cell transplant without risking waiting too long and giving the cancer a chance to get immune to the chemotherapy. We'll let you know what we find out at the meeting on Monday. So, we are happy to be going home today. Kelby really wants to see the butterflies that I painted in her room. She seems to be really into butterflies now. Yeah!